About Us

Founded in 1991, IPWSO’s mission is to raise the quality of life for all people with Prader-Willi syndrome (PWS) and their families around the world.

Financed by subscriptions from member associations, donations and grants, IPWSO is a non-profit organisation, run by volunteers, with two part-time office staff. IPWSO provides a wealth of information and support to families across the world, many of whom do not have access to support within their own countries.

To find out more about our work please visit our main site www.ipwso.org.

For general enquiries about the conference please contact our conference office on [email protected].

Conference organising committees:

Co-Presidents of the conference:

Prof. Tony Holland
President of the International Prader-Willi Syndrome Organisation (IPWSO)

Beatriz Marcheco Teruel MD, PhD
President of the Cuban Human Genetics Society

Clinical and Scientific committee:
Daniel J. Driscoll, MD, PhD, Professor of Pediatrics and Genetics. Chair of the Clinical and Scientific Advisory Board of IPWSO.
DraC. Prof. Estela Morales-Peralta, Clinical Geneticist. Board Member of the Cuban Human Genetics Society.
Dra. Hilda Roblejo Balbuena MsC., Clinical Geneticist. Member of the Cuban Human Genetics Society.

Professional Providers’ and Caregivers’ committee:
Norbert Hodebeck-Stuntebeck, PhD, Psychologist. Chair of the Professional Providers and Caregivers Board of IPWSO.
Dra. Beatriz Suárez Besil, MsC. Genetics Counsellor. Member of the Cuban Human Genetics Society.
MsC. Damaris Rizo López, MsC. Genetics Counsellor. Member of the Cuban Human Genetics Society.

Parents’ committee:
Georgina Loughnan, Director FAMCARE, IPWSO
Amalia Balart, Board member, IPWSO
DraC. Prof. Paulina Araceli Lantigua Cruz, MD, PhD. Clinical Geneticist. Vice-President of the Cuban Human Genetics Society.
Dra. Laritza Martínez Rey, Clinical Geneticist. Member of the Cuban Human Genetics Society.

People with PWS programme committee:
Dr. Loisel Bello Ulloa, MsC.
MsC. Marlen Román García, MSc.
Maylin Armas Fuego. Local Coordinator of CARITAS-CUBA.
Mariona Nadal, Board member of IPWSO

Scholarships

A small number of travel grants are available to cover the cost of registration, travel and accommodation for individuals and professionals to attend. These grants are intended to support people who would not be able to attend otherwise. To apply follow this link. The closing date for applications is 15 May 2019.

Past Conferences

IPWSO’s 9th international conference was held in Toronto, Canada in 2016.

IPWSO’s 8th International conference was held in Cambridge, UK in 2013.

For further information see our main site