About Us

Founded in 1991, IPWSO’s mission is to raise the quality of life for all people with Prader-Willi syndrome (PWS) and their families around the world.

Financed by subscriptions from member associations, donations and grants, IPWSO is a non-profit organisation, run by volunteers, with two part-time office staff. IPWSO provides a wealth of information and support to families across the world, many of whom do not have access to support within their own countries.

To find out more about our work please visit our main site www.ipwso.org.

For general enquiries about the conference please contact our conference office on office@ipwso.org.


We hope to make available several scholarships to cover the cost of registration, travel and accommodation for families and professionals to attend. These scholarships are intended to support people who would not be able to attend otherwise.

Further information will follow, to be kept up to date with announcements click here .

Past Conferences

IPWSO’s 9th international conference was held in Toronto, Canada in 2016.

IPWSO’s 8th International conference was held in Cambridge, UK in 2013.

For further information see our main site