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Why Cuba will be special for parents and families

Verena, a mother of a 29 year old daughter with PWS, explains why attending this conference will be so valuable for families:

Knowledge is so necessary to manage the challenges of life with PWS.

In Cuba you will have the opportunity to get support if you have a baby, a young child or even a grown-up with PWS: experts from all over the world will come together to report and discuss, to give hope and knowledge.

Topics like nutrition, physical activity and therapy, school education, ageing, work and behavior management at home or in a residence will be treated and discussed with you by scientists, professional caregivers and parents with special PWS experience. This is something unique as living with PWS is not so common. It is like “coming home”! Don’t worry – they will speak to you as a mother, father or another family member. They will understand you.  The IPWSO family speaks the same language – maybe the first time since the birth of your daughter or son!!?? But you will get also hope and perspectives that a quality of life with PWS is not only possible but also experienced! I am sure that you will find in Cuba the part of the puzzle which is useful and helpful for your future and the future of your individuals with PWS!!

Verena

Mother of a 29 year old daughter with PWS

IPWSO board member

Board member of PWS AUSTRIA

IPWSO President, Professor Tony Holland introduces our 10th international conference

IPWSO President, Professor Tony Holland introduces our 10th international conference and why you should put it in your diary now! 

A great IPWSO conference in partnership with Cuban colleagues in an exotic place with an extraordinary history – what more could you want?  

This 10th IPWSO conferences, like past IPWSO conferences, will provide a forum for scientific enquiry, for parents and care providers to hear about new thinking and to share and exchange their ideas, and for people with PWS to meet with each other and have fun.  

IPWSO seeks to draw people together from across the world who share the common aim of making life better for people with PWS. For clinicians and scientists this is a rare chance to exchange ideas across academic disciplines and to present new findings and by taking part in the parents’ and care providers’ conferences to discuss their work and to learn from others about the concerns of families and people with PWS.  

Coming together every three years is always special wherever it is in the world but meeting in Cuba brings something more, a place with grand old buildings, a beautiful coast and a music loving people. I encourage you to come and immerse yourself in the conference, see the island, and enjoy some salsa!