There has been much in the news about changing regulations from the American Government about who and under what circumstances USA citizens or citizens from other countries travelling through the USA to go Cuba are allowed to travel. Further information has been added to our website (on our travel page) which I hope will be helpful. We have been monitoring the situation closely. We, of course, cannot be certain what will happen in the months to come. However, the IPWSO Board has made the decision to continue with the plans.
This is an important conference that has already brought benefits to people with PWS and their families in Central and South America as the mere fact of holding the conference in Cuba has raised the profile of PWS in these many countries. As has been the case in the past we will be bringing together clinicians and researchers who are experts in PWS or who are wishing to become experts to be part of the Clinical and Scientific Conference. The Professional Providers’ and Caregivers’ and Parents’ conferences have become a major event bringing together, from across the world, those directly involved in the support and care of children and adults with PWS.
Our experience is that those involved in these different conferences go back home feeling reinvigorated and with new ideas. Cuba is a fascinating country with a complex and difficult history that has led to great resilience and ingenuity. Our hosts the Cuban Genetics Society are waiting to welcome us all. I hope you feel able to come. Registration will open very soon.