Final preparations…!

Life has been a bit frantic with the final preparations for our 10th International conference which is being held in partnership with the Cuban Human Genetics Society in the Cojimar Conference Centre just outside of Havana from the 13th to 17th November 2019.

For the different parts of the conference we have delegates registered from over 35 countries and registrations are still coming in (there is still time to register, do it today!). This will be a unique opportunity for clinicians, scientists, parents, caregivers, and people with PWS from around the world to meet and share ideas. There is no other conference that brings together people in such a powerful way and we know it is going to be extra special in Cuba.

You will see from the programmes that we have reviews and workshops and almost every topic relevant to the needs of people with PWS will be discussed at one or other of the individual conferences. This conference, held every three years, is also an opportunity to renew friendships and to recharge your batteries so that you can return to your own country with new ideas.

At the General Assembly held at 5.00pm on the final day (Sunday 17th November), a new Board of Trustees for IPWSO will be elected by our member organisations. The names of those proposed are on our website. This meeting is also an opportunity for present and future Board members to hear from you about what you would like us to do – how can IPWSO work to improve the lives of people with PWS across the world and create and maintain this ‘international PWS family’. We have ideas but we want your ideas also.

For those who have not registered it is not too late – Cuba is irresistible!



Photo by Arno Smit on Unsplash

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